The Gaucher Guide to Grace — Rivka Silver

Now that we’re in the month of November and the leaves and weather have shifted to fall, I’ve been reflecting on the idea of transitioning through seasons. Time often feels linear, but the beauty of seasons is that they bring cycles of change: moments of growth, transition, and movement. I…

Our society often rewards the people who are always going, going, going. We measure success by how busy we are, how much we accomplish, and how many people we can please along the way. For a long time, I lived that way, too. I felt the constant pressure to do…

My interest in nutrition began when I started noticing how much food affects how I feel — not just physically, but mentally and emotionally, too. Learning about the connection between diet, inflammation, and overall wellness opened my eyes to how much influence we have through the choices we make each…

Living with Gaucher disease has shaped how I think about my body in ways I never expected. For many people, body image is about appearance. For me, it has been less about the surface and more about the deeper, unsettling feeling that my body is failing me. When I…

As the Jewish new year approaches, I find myself in a season of reflection. I’m looking back on the past year and taking stock of how far I’ve come, while also looking ahead with hope and intention. Living with Gaucher disease means that I’m always aware of my body,…

Pilates workouts have become my “me time.” Once or twice a week, I step away from everything else — work, parenting, and the constant noise of daily life — and focus on myself and rebuilding my strength. After pregnancy, I felt especially weak, and Pilates offered a safe way…

Whether a mother feeds her baby by breast, bottle, pumped milk, or formula, it’s all sacred. Feeding a baby is an incredible act of love, and every mama is a superstar for sustaining life in whatever way she can. That said, breastfeeding has been the biggest blessing of my journey…

A couple of weeks ago, I faced a moment that many parents, especially those living with chronic illness, will recognize all too well. As a mom with Gaucher disease, I receive infusions every other week. And with a 10-month-old who’s constantly on the move, I’m always juggling how to…

Living with Gaucher disease often means relying on medication. Enzyme replacement therapy (ERT) is the foundation of my symptom management. But while ERT plays a vital role in my health, I’ve come to believe that it’s not the only key to me feeling better. In fact, focusing solely…

As someone who is generally healthy and asymptomatic, I often feel like my Gaucher disease is tucked away in the back of my mind. Sometimes it creeps back in, reminding me, “Hey, I’m still here” — like when I get my infusion every other week or when my…