This week, on Oct. 1, the International Gaucher Alliance (IGA) is marking International Gaucher Day with the theme “Equity in Action,” highlighting that people with Gaucher disease may be at different stages of their journey and should have access to information, care, and support wherever they are. This…
For me, growing up with Gaucher disease involved a dichotomy of sorts. I did all the “normal” things kids do, but at the same time, my parents and doctors would tell me to be careful and remind me that I was disabled. I never had the privilege of experiencing…
For the first 28 years of my life, I played the part of an athlete, a straight-A student, and a fun, witty, and cute girl who thrived on being social. I knew how to blend in, run with the crowd, and make friends with ease. I never felt invisible. But…
