I was told many years ago that I had an actual expiration date. Put that way, it makes me think of a banana in the grocery store eventually going bad. I know it sounds a bit dark, but that’s what comes to mind. When I was 18 months old, my…
Long Story Short - Victoria Villar-Villar
Victoria lives in Charlottesville, Virginia, and has a bachelor’s degree in Spanish. She was diagnosed with Gaucher disease in 1996. Victoria loves hummus, watching the Spanish National Soccer team, reading, and spending time with friends and family. She hopes to share the joys, and sometimes pains, of living fully with a rare disease
Most people would never notice anything different about me until they saw the Band-Aid on my hand. It leaves the door open to questions I do not, and often cannot, answer. These questions can leave me feeling exposed before I even have a chance to introduce myself. This is often…
