Reflecting on how I’ve grown stronger over the past year

As the Jewish new year approaches, I find myself in a season of reflection. I’m looking back on the past year and taking stock of how far I’ve come, while also looking ahead with hope and intention. Living with Gaucher disease means that I’m always aware of my body, my energy, and my limits. But this year, I’ve also become more aware of my strengths.

This past year has been one of profound change. I became a mother, stepping into a role that has stretched me in every possible way: emotionally, physically, and spiritually. At the same time, I’ve continued to work full time, while also pursuing my passion for health and wellness. I earned my certifications as a functional health coach and holistic nutritionist, which not only deepened my understanding of the body but also gave me new tools to support others who are navigating their own health journeys.

There have been challenges, of course. Postpartum recovery while managing Gaucher symptoms has required me to slow down, listen carefully to my body, and practice patience with myself. Fatigue and bone pain have been ongoing struggles, but I’ve been intentional about focusing on nutrition, choosing foods that keep me nourished and give me the energy I need. I’ve also stayed consistent with my infusions, which are essential in helping me manage my symptoms and moving forward.

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But there have also been victories. I’ve grown stronger physically by focusing on my fitness, and mentally by building resilience and self-compassion. Looking back, I’m proud of the progress I’ve made.

Too often, it’s easy to focus on what’s hard or what still feels unfinished. But this year reminded me to celebrate the victories, whether it was managing a flare while caring for my baby, finding strength I didn’t know I had in Pilates, or making space for my own healing in the midst of everything else.

As I move forward, I carry with me the knowledge that living with Gaucher doesn’t mean limiting my life; it means learning how to adapt, grow, and thrive in my own way.

Looking to the future, I hope to one day open my own clinic to support Gaucher patients and others through nutrition and holistic approaches that can complement medical care. At the same time, I know my most important role is being a mom, and I will continue finding ways to balance my health, manage my symptoms, and care for myself so I can care for my family. This past year has shown me that I have the tools to keep building strength, honoring my health, and creating a life that allows me to thrive.

Note: Gaucher Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Gaucher Disease News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to Gaucher disease.

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