For me, growing up with Gaucher disease involved a dichotomy of sorts. I did all the “normal” things kids do, but at the same time, my parents and doctors would tell me to be careful and remind me that I was disabled. I never had the privilege of experiencing…
For the first 28 years of my life, I played the part of an athlete, a straight-A student, and a fun, witty, and cute girl who thrived on being social. I knew how to blend in, run with the crowd, and make friends with ease. I never felt invisible. But…
I’m currently navigating a plethora of health challenges, including Gaucher disease and a recent diagnosis of antiphospholipid antibody syndrome, all while raising an almost-2-year-old. So you might think my family and I were crazy for recently traveling across the world to the United States. And, honestly, maybe we…
