When I was younger, I knew what an implanted port was, but my understanding of it was limited. Then, in 2010, I received a phone call that would change my life. I was told that I had been diagnosed with a rare genetic disorder called Gaucher disease and I’d…
In January 2025, I was scrolling through Instagram, trying to distract myself from the cold and the fact that I still couldn’t walk well on my leg, when I came across an influencer who had decided on a whim to fly to Paris with her friends. My first thought wasn’t,…
When you live with a chronic illness, you learn to pay attention to your body. You notice changes. You learn what is normal for you and what isn’t. You learn which symptoms can wait until your next appointment and which ones deserve a phone call to your doctor or…
