When you live with a chronic illness, doctor appointments become a regular part of life. Some are routine. Some bring answers. Others bring more questions than you walked in with. Over the past few months, I’ve had more than my fair share of them. What started with one unexpected medical…
Among adults receiving treatment for Gaucher disease type 1, greater pain and fatigue were associated with poorer health-related quality of life, according to a study highlighting the need for greater recognition and more targeted care for these persistent symptoms. “These findings support routine integration of validated patient-reported outcome measures…
“Family isn’t always blood. It’s the people in your life who want you in theirs. The ones who accept you for who you are. The ones who would do anything to see you smile, and who love you no matter what.”― often attributed to Maya Angelou Growing up, my household consisted…
