Growing Miss Violet — Marion Glaser
Marion Glaser is a wife, mother, U.S. Forest Service employee, and small business owner in Moose Pass, Alaska. She and her husband, Jesse, balance care for their two amazing kids, the youngest of which has Gaucher disease. Their family enjoys life on Kenai Lake with two goofy golden retrievers.
Sometimes coordinating care and medical appointments for a rare disease can feel overwhelming and lonely. Marion hopes that through her column, she can create community and raise awareness of Gaucher disease.
Solving Violet’s puzzle: Our journey to a Gaucher disease diagnosis
The path to a diagnosis can be long and winding — especially when the condition is rare. Often, it takes years to solve the puzzle. Fortunately, I love a good puzzle. Our daughter, Violet, was a beautiful, seemingly healthy baby. But within a few months, we noticed signs that something…
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