Marion Glaser is a wife, mother, U.S. Forest Service employee, and small business owner in Moose Pass, Alaska. She and her husband, Jesse, balance care for their two amazing kids, the youngest of which has Gaucher disease. Their family enjoys life on Kenai Lake with two goofy golden retrievers.
Sometimes coordinating care and medical appointments for a rare disease can feel overwhelming and lonely. Marion hopes that through her column, she can create community and raise awareness of Gaucher disease.
Last Saturday, my 7-year-old daughter, Violet, and I volunteered with Stream Watch, an award-winning program that takes care of high-use fishing sites on Alaska’s Kenai Peninsula. Stream Watch volunteers pick up litter, collect monofilament from recycling tubes, teach visitors about ethical angling, provide natural history education, and promote bear safety.
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